Retrospective Data Collection

The RDC (retrospective data collection) Database is composed of administrative data from CHEER sites. It is the foundation for selecting sites to participate in studies or initiatives that fit a site’s practice profile. Thought leadership and design of the RDC is guided by the AAO-HNSF Task Force for Practice-based Research. RDC 1 was CHEER’s first data harvest and has been the basis for four publications and cited in numerous others. It is the largest database of otolaryngology data collected by and for otolaryngologists.

Study Details

The RDC project was completed in 22 sites. Each site submitted one calendar year of patient de-identified data. The RDC database currently holds more than 261,484 unique patients with 650,716 unique encounters with ICD9, demographic, and CPT codes.

Value of the RDC

The RDC has proven its value by:

  • Matching sites to initiatives
  • Providing grant sample size feasibility
  • Pilot data for investigators
  • A big data research resource

An update of the site descriptor database (RDC2) is under way through a combined approach of traditional data capture and electronic sharing activities.

CHEER Applied is launching a collaborative project with DARTNet Institute to develop capability to extract data elements from the clinical record for research and physician quality reporting. If you are using one of a number of common EHRs (19 KB PDF), you could be eligible to receive full support for this powerful demonstration project. A limited number of sites will be selected for this trial.

DARTNet technology is HIPAA compliant and will ensure that the data extracted is analyzed and reported accurately to YOU. The aggregate data collected in this initiative will be used to refine the data extraction specifications and processes before being rolled out as a fee based service to other practices. Early adopter sites will be fully supported for a period of 3 years. Fees are expected to be very reasonable, based upon the complexity and frequency of the reporting each practice elects.

With the update, the AAO-HNSF Task Force on Practice-based Research will provide input on additional fields they advise are feasible to extract for the RDCs and value-added.

The current fields are:

  • Patient Identifier (scrambled but unique so a patient can be followed)
  • Encounter ID
  • Month of visit
  • Year of visit
  • Gender
  • Race
  • Ethnicity
  • Age at time of visit
  • Primary Dx
  • All available secondary Dx
  • Primary Px
  • All available secondary Px

Through the AAO-HNSF Task Force on Practice-based Research, several manuscripts were prepared. RDC manuscripts for the feature issue of the Academy’s Journal include:

  • Thyroid (submitted)
  • Menieres (submitted)
  • Tonsillectomy/bleed rates (close to final)
  • Vestibular Testing (analyses complete; being written)

Manuscripts focus on practice variation and patterns. All task force members are listed as co-authors.

Related Upcoming Presentation

(ON6) Oral Presentations – Otology/Neurotology (7:30 a.m. – 9 a.m.)
Tuesday, September 29, 2015
7:36 a.m. – 7:41 a.m.
Meniere’s Disease CHEER Database Study of Regional Practice Patterns
Matthew G. Crowson, MD – Resident Physician, Duke University
Kristine Schulz, DrPH, MPH – Research, Duke University Medical Center
Debara L. Tucci, MD – Professor, Duke University
Alan Langman, MD – Clinical Instructor, University of Washington
Walter Lee, MD – Associate Professor, Duke University Medical Center

Walter Lee/Task Force Chair (Duke),
Alan Langman/Task Force Community Advisor to the Chair (Puget Sound Hearing & Balance),

  • Walter T. Lee, MD (chair); Sheila E. Ryan, MD; Kristine Schulz, DrPH; David Witsell, MD, MHS; Duke University Medical Center, Durham, NC, USA
  • Kourosh Parham, MD, PhD; University of Connecticut Health Center, Farmington, CT, USA
  • Jennifer J. Shin, MD; Harvard Medical School, Boston, MA, USA
  • Melissa A. Pynnonen, MD; University of Michigan, Ann Arbor, MI, USA
  • Alan Langman (community advisor to the chair), MD; Puget Sound Hearing & Balance Group, Seattle, WA, USA
  • Anh Nguyen-Huynh, MD, PhD; Oregon Health & Science University, Portland, OR, USA
  • Andrea Vambutas, MD; Hofstra North Shore-LIJ School of Medicine, Long Island Jewish Medical Center, New Hyde Park, NY, USA

Invited participants for past year initiatives:

  • Nikita Chapurin (medical student, Duke)
  • Matthew Crowson (resident, Duke)
  • David Matesanz (research operations and strategy, Duke OHNS)
  • Lisa Ishii (JHMI)